ملخص الدراسة:

This study aimed to assess the quality of life of children (3-12 years) diagnosed with Thalassemia in Gaza Strip._x000D__x000D_
A descriptive, analytical, cross-sectional design was used. All children 3-12 years old who were diagnosed with thalassemia_x000D__x000D_
and live in GS were included in the study (75 cases) with response rate (81.3%). Participants were interviewed by the_x000D__x000D_
researcher and completed the questionnaire which focused on quality of life of chronic diseases and included five domains._x000D__x000D_
These domains are physical health, psychological health, social relationships, environment health and personal safety. Validity_x000D__x000D_
and reliability of the instrument were tested and the total instrument reliability test (Cronbach's Alpha) was 0.767. The scores_x000D__x000D_
for the study domains ranged between 2.81 for personal security domain and 3.66 for environmental health domain. Moreover,_x000D__x000D_
the study domains did not show statistically significant difference when compared by sex, living places, monthly income the_x000D__x000D_
relationship between parents and recurrent hospitalization. The findings of this study suggest the need of children diagnosed_x000D__x000D_
with thalassemia for support in all study domains. Health professionals need to work to minimize the disease's burdens. The_x000D__x000D_
current study calls the attention of health policy makers for new policies and new roles for the community health nurses and_x000D__x000D_
social workers. The study also revealed that there is a bad need to pay more attention when caring and dealing with_x000D__x000D_
thalassemia patients. Special food supplementation should be available in order to improve their physical health, more_x000D__x000D_
psychological support from their families and the society is needed. In addition, there is a need to provide safe environment_x000D__x000D_
and to enhance personal safety of these children.

توثيق المرجعي (APA)